What do business executives, stay-at-home moms, a PhD scientist, community organizer, computer scientist, and former professional basketball player all have in common?

These individuals are some of the inspiring leaders of patient-driven organizations fighting tirelessly for cures, treatments, and therapies to one of 7,000 known rare diseases.

As part of the Rare As One Project, we’re supporting 30 patient-led rare disease organizations that are working to develop and strengthen a collaborative research network in their disease area, convene their research community, and align around shared research priorities. …

Chan Zuckerberg Science Initiative

Supporting the science and technology that will make it possible to cure, prevent, or manage all diseases by the end of the century.

Get the Medium app

A button that says 'Download on the App Store', and if clicked it will lead you to the iOS App store
A button that says 'Get it on, Google Play', and if clicked it will lead you to the Google Play store